Midwest Diva
24 August 2011 @ 10:21 am
Go to invisibleillnessweek.com to learn more!

1. The illness I live with is:
Fibromyalgia (FMS), Interstitial cystitis (IC), Post Traumatic Stress Disorder (PTSD),
Functional Dyspepsia, Gastroesophageal reflux disease (GERD), IBS, TMJ, Barrett's
Esophagus, Hiatial Hernia, & Hidradenitis Suppurativa. I may be forgetting something.

2. I was diagnosed with it in the year:
FMS and IC - 2011
Dyspepsia - 2009
Barrett's, Hernia, GERD, IBS, TMJ - 2008
Hidradenitis Suppurative - 2003
PTSD - 2000

3. But I had symptoms since:
On and off I have had symptoms for everything since 1998 but I started to get really sick in 2006.

4. The biggest adjustment I’ve had to make is:
Learning that I can do anything I want just not always when I want.

5. Most people assume:
That because I look fine on the outside I'm perfectly healthy, I'm lazy or stupid, or that a simple Advil will cure me.

6. The hardest part about mornings are:
Working through my stiff joints and muscles as I'm running to the bathroom for the millionth time and then NOT getting back into bed because I have to be up for the day.

7. My favorite medical TV show is:

8. A gadget I couldn’t live without is:
A laptop, access to anything from the comfort of my couch!

9. The hardest part about nights are:
Trying to get comfortable enough to sleep.

10. Each day I take 10-15 pills & vitamins.

11. Regarding alternative treatments I:
Have been poked and prodded for acupuncture and put at least two therapist's kids through college.

12. If I had to choose between an invisible illness or visible I would choose:
Invisible. While it's hard to get anyone to take me seriously I don't like disclosing to everyone and their grandma that I'm not up to my best. Sometimes to get through a day you have to forget the pain, the anxiety, how overwhelmingly tired you are and just keep going.

13. Regarding working and career:
I'll finish school one of these days, until then I'm taking a much needed break thanks to
disability payments.

14. People would be surprised to know:
When I'm cracking a lot of stupid jokes it's probably to keep from crying.

15. The hardest thing to accept about my new reality has been:
My life won't go as I had always planned it. As I watch my friends pass me with diplomas
in hand and starting families I'm stuck in a place I never thought I would be. I wished for a
long time I was "normal" but I've learned to accept my "normal" and do the best I can with
it. Also that I can't be mad at myself when I put the milk in the pantry or forget to do
something important AGAIN.

16. Something I never thought I could do with my illness that I did was:
Accept it and myself.

17. The commercials about my illness:
Are totally wrong. Lady, you don't have Fibromyalgia if you can rub your trigger point like

18. Something I really miss doing since I was diagnosed is:
Sleeping through the night, eating without mentally mapping out every trash can and

bathroom around me, having endless amounts of energy and moving without pain.

19. It was really hard to have to give up:
Working and college. Being stubborn and letting people help me.

20. A new hobby I have taken up since my diagnosis is:
Collecting cats.

21. If I could have one day of feeling normal again I would:
Give Michael, my fiance, a day off!

22. My illness has taught me:
Patience and how to say no

23. Want to know a secret? One thing people say that gets under my skin is:
"But you don't look sick!" & "I get aches and pains too, I totally know how you feel!"

24. But I love it when people:
Ask how many spoons I have today. :)

25. My favorite motto, scripture, quote that gets me through tough times is:
“A ship in the harbor is safe. But that’s not what ships are built for.”

26. When someone is diagnosed I’d like to tell them:
It's not the end.

27. Something that has surprised me about living with an illness is:
How strong I really am. Also, how many people out there can truly relate and how many people out there are utterly insensitive.

28. The nicest thing someone did for me when I wasn’t feeling well was:
Pretty much everything Michael has done for me is the nicest thing anyone has ever done for me.

29. I’m involved with Invisible Illness Week because:
I want more people to know that appearance doesn't mean anything when it comes to how you feel. I want others to know they are not alone.

30. The fact that you read this list makes me feel:
Loved. Spread the word!
Midwest Diva
31 January 2010 @ 07:28 am
I switched usernames. Miss__Artichoke is now Blu_Birdie. Sorry for the confusion. I want to keep all my online usernames the same.

You may go back to panicking now.
Midwest Diva
04 April 2000 @ 03:00 am


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